Yesterday we decided to take advantage of the crazy 80 degree weather we are having and live it up at Lee Farms Pumpkin Patch. We jumped on a giant pillow, joined a hayride and met some animal friends. Earlier in the day, Emery decided to take up skateboarding and demonstrate her ambidextrous skills all while Aks was at school. All in all.... a fun and busy day!
Keep praying! Mom received some interesting news this past week. After NIH reviewed her chart information, they decided they didn't agree with her previous diagnosis. AHHH! They believe she has the broad, more general peripheral T-cell lymphoma rather than the extremely rare type. Under this better known (but still rare) diagnosis she qualifies for the stem cell transplant! We are excited that this means insurance will cover the stem cell transplant and are very relieved that it will likely happen in Seattle as opposed to D.C.
However, as you may imagine... it is frustrating to think that with this diagnosis, she could have had the stem cell transplant back in August when her body was ready. Since then, the differentiated chemo has caused nerve damage in her feet and suddenly her EBV count has once again increased. Although she had great periods of feeling strong, the last 2 weeks have been difficult and included 2 more visits to the ER and one hospital admission. We have to continue to trust in God's plan for her. This change in diagnosis will not likely change her prognosis, but we will know more when she feels well enough to meet with the doctors at Seattle Cancer Care Alliance. Please join us in prayer for continued direction in her treatment of this cancer. We pray healing over her body again in order to prepare for the stem cell transplant. Thanks for your continued prayers!
Click Here for video
Friday, October 16, 2015
Thursday, October 1, 2015
Birthday cheer to the ER... continued prayers
Sorry our posts/videos have been MIA lately. Travis' grandma passed and he was able to take a trip to visit his family in Iowa. Life always holds the sweetest moments bundled with the pain. I personally look forward to life beyond this one, but hold dear to the familiar of what I know here on earth.
This post is a mix of weeks past, time with grandma and birthday celebrations together. We did not include video from this week as 2 for 3 kiddos have croup... and I am getting NO SLEEP. :0 On the bright side, Madsen only woke up at 2:30am and 6:00am last night, but Emery needed me in her bottom bunk every 30 minutes saying, "I can't be on my own sowf mommy."
Unfortunately mom had to be admitted to the ER this past Sunday night. She had uncontrollable nausea, pain and developed a 103 degree fever. She ended up with an unexplained colitis that they are monitoring. Please pray for her healing and that they hear back from NIH soon to continue the process towards a stem cell transplant.
Her visit to the ER was disheartening and feels like a step back. It seems difficult to swallow her hurting and pain compared to the beautiful 3 weeks she has had, however just as in all of our lives, the ups and downs just make us stronger if we look to the One from where our strength comes from. In that vein, may strength and peace extend to families in the Umpqua Community College shooting. My heart breaks for those hurting just 2.5 hrs from us in Roseburg, OR. "Lord, may you comfort those broken from the senseless loss of those whose lives were cut too short. We don't have answers, but we know that we are all broken and capable of heinous sin. Be our Light amidst the brokenness. May love transcend. Amen."
click HERE for video
This post is a mix of weeks past, time with grandma and birthday celebrations together. We did not include video from this week as 2 for 3 kiddos have croup... and I am getting NO SLEEP. :0 On the bright side, Madsen only woke up at 2:30am and 6:00am last night, but Emery needed me in her bottom bunk every 30 minutes saying, "I can't be on my own sowf mommy."
Unfortunately mom had to be admitted to the ER this past Sunday night. She had uncontrollable nausea, pain and developed a 103 degree fever. She ended up with an unexplained colitis that they are monitoring. Please pray for her healing and that they hear back from NIH soon to continue the process towards a stem cell transplant.
Her visit to the ER was disheartening and feels like a step back. It seems difficult to swallow her hurting and pain compared to the beautiful 3 weeks she has had, however just as in all of our lives, the ups and downs just make us stronger if we look to the One from where our strength comes from. In that vein, may strength and peace extend to families in the Umpqua Community College shooting. My heart breaks for those hurting just 2.5 hrs from us in Roseburg, OR. "Lord, may you comfort those broken from the senseless loss of those whose lives were cut too short. We don't have answers, but we know that we are all broken and capable of heinous sin. Be our Light amidst the brokenness. May love transcend. Amen."
click HERE for video
Subscribe to:
Comments (Atom)